Well, I had decided I preferred to do all this BRCA stuff through MD Anderson, the slow-moving giant. They are world-renowned, and I feel good being there, for the most part. I also feel like I'm making a difference being part of their research studies, to help others with this mutation! BUT, they have been slow as molasses and still haven't granted me an appointment to see their gynecologic oncologist. And timing is crucial here because when Dan switches jobs we'll be on COBRA with a real high deductible for 90 days. So I kept my appointment with Dr. Dinh at Methodist today.
Dr. Dinh wants to take my ovaries out. Like, now. Well, now is a little too soon for me. As far as I can tell, the risk increase between 35 and 40 is very small, and I have a little baby to take care of. Aside from that I'm worried about my bones, my cardiovascular health, and my quality of life.
He was recommended to me by Aunt Susie (Hi, Aunt Susie!). She said, "He's funny. He likes to laugh." That made me almost smile, then stop myself. I'm not quite sure if I want the guy who castrates me to be a big laugher. Maybe it's just me, or maybe I'd take this more lightly if I were older. But I'm still welling up with tears thinking about never having another child. When he mentioned something about wanting my ovaries "in a jar," it just wasn't real funny to me.
The least I wanted from this guy was an exam and a pap, and I got that. The most I wanted was a thoughtful conversation about the pros and cons of having my ovaries out now vs. waiting a year or two or three, and I didn't get that. I think his answer would have been the same for me, being BRCA1+, regardless of what age I came in: He is ready to take my ovaries out. He said, "Well, you know, to a guy with a hammer, everything looks like a nail." True, but that is a cop-out. He said, "Call me when you're ready."
I asked about getting an ultrasound, and he said okay. But he also warned me that if a cyst showed up it might look like cancer ... and then I will wind up getting an oophorectomy anyway. He said, "You know, it can happen when you're ovulating ..." I told him, "No, I'm not ovulating right now." (Because of the breastfeeding, I'm not having periods.) So, do cysts just form when you're ovulating? I couldn't seem to convince the guy that I really am not ovulating, at all. Anyway, if I do get a false positive, that would be crappy for us, financially, because of the above-mentioned health insurance situation.
Max fell asleep on the way out of the building and slept most of the way home.
Gabe and Daddy got packages this evening. Joe announced to us, "The U.E. Pess man is here!" (U.E. Pess is what he keeps calling UPS!)
Max is having fun playing in the yard with everyone as I'm writing.
Now I've got to decide what to do with the two little self-destruct buttons in my abdomen. They have been good to me, but my body can't protect them. I think I'll get a second opinion on this when I can ... I am hindered by insurance issues and slow-moving institutions.